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The personal cost of paying it forward

I love the idea of paying it forward, a kind gesture where you leave a money behind the till for the next persons coffee, where someone pays for another’s meal on leaving a restaurant, a good turn where a gesture makes to payee feel good and benefits the payer with good karma; in time the payer will receive, by fate, their own good deed from another.

That’s the idea of paying it forward, I’ve always liked it and would encourage others to do it however, and as I learnt last night there are some factors which should be taken into consideration.

Some background info; Wednesday evening every week I come home from work and take a child out, on their own, to spend some quality time. Nothing deep and meaningful but just some 1-2-1 time. I’ve been doing it 2 years and each child takes turns. This week was Dylan’s turn.

Dylan has variety with his choices, it was Pizza Hut for many weeks, then Nandos but more recently he has chosen the local Beefeater restaurant. He asks about it for at least a fortnight prior to it being his week out, reeling off in his IPad his choice; paprika chicken, garlic bread, chunky chips, peas, cup, ice, Pepsi, brownie, ice-cream. He is practicing his order over and over again so we encourage him to make it into a sentence and he adds ‘and’ between each label. It’s a motivating situation for him. He adores going out to eat.

Tables booked for 7pm and at 6.50 on our way out the door Dylan’s iPad battery is dead, Dang! Grabbing the backup iPad – also dead, double dang! Right this is fine; we can work through it as we have many times before, got some paper and a pen, no problem.

We get to the restaurant and its quite busy but that’s fine, Dylan’s excited and gently humming to himself, he’s skipping a bit but nothing too major and he’s happy so its fine, he’s in a good place.

As we are waiting to get seated I see there’s a sign saying that there is a problem with the restaurant supplier and so THERES NO CHICKEN. Arghhh, I just notice this as the server comes over to seat us, no time to prepare Dylan we grab our menus and have a seat.

As we sit down I prepare Dylan

‘Dylan there’s no chicken today, you’ll have to have something else, you can have a burger, steak, ribs…’

‘Durder’ was his swift reply.

We get the menu and copying the item from the menu he writes his request. No issue.

 

 

 

 

 

 

 

Halfway through writing his lengthy order the pen runs out, I show him how to shake it gently to get the ink flowing again, Dylan takes the pen off me and when it starts slowing down again he repeats the shaking to get it working. No issue.

We order and then Dylan needs the toilet, he hates hand dryers and obviously I forgot his radar key so we have to go into the ladies – cue lots of hand dryers

– Still, no issue.

The food arrives, in my haste to support Dylan’s order I overlooked the fact it comes smothered in cheese – DYLAN CAN’T STAND CHEESE. He opens the burger bun, gives it a dirty look and hands me a fork whilst requesting help to get rid of the cheese ‘Hup’. I clear the cheese. No issue.

We eat, I chat a bit, it’s a normal night out for us. I’m proud that Dylan has become quite resilient to the unpredictable changes when we are out. He can manage with support without his iPad. We come to the restaurant quite often and the staff are familiar with Dylan, a waitress that served us last time ruffles his hair to greet him on her way past. She makes him jump, he glances up ‘yah bee’(yes please) is his go-to response when startled.

Glancing around the room and its starting to get busy and there are a couple of women sitting at a table 11 o’clock to where we are sitting. I glance over to see the lady facing me looking at us, she gives a big beaming smile as we make eye contact, I look away unable to fathom if I know her from somewhere. I couple of times I look up to see her watching us. This isn’t unusual, often people will watch Dylan, his tics and behaviours are quite noticeable, but especially at special times like us being out together I try and zone out everyone else and make Dylan the centre of my attention.

A few minutes later the friendly hair ruffling waitress is over at their table, she’s shaking her head whilst the lady facing us is talking to her, the lady appears to be gesturing towards us and it appears from her face that she is making further requests to the waitress who continues to lean forward into the table and apologetically shake her head. I look away, feeling painfully paranoid that they are talking about us.

Focus on Dylan, focus on Dylan.

I start to remind Dylan that it will be time for pudding soon and so let’s get your order ready. Out the corner of my eye I see the lady from the table opposite get up and follow the waitress to the pay station, I quickly look away, hopefully they are paying and leaving.

Right on cue our waiter appears and Dylan is ready with his penned ‘brownies and ice-cream’ request for pudding, the waiter is lovely, speaking directly to Dylan and full of smiles and encouragement for him, sadly my only pudding request is the bill.

Dylan and I get back to our plans for the week, talking about college and Josh and Grace going back to school when the waitress comes over. She looks embarrassed and tells me that a man has offered to pay for Dylan’s dinner. I disagree, I mean, that’s kind and all but wholly unnecessary. She tells me it’s too late; the man has paid £10 for Dylan’s food and left, she says that the message was he thought Dylan was so sweet and just wanted to pay towards his food. My bill will now be £10 lighter.

My eyes prick with embarrassment.

‘Oh that’s so nice’ I say not wanting to appear ungrateful. I am ungrateful. I’m livid. The waitress puts her arm around me, uncomfortable with my teary response and I think uncomfortable with the position she has been put in. She leaves us to carry on serving her tables and I can barely look up. I cover my face with my serviette desperate not to look up at see the lady looking over. Trying to contain myself I refocus on Dylan and get back to our conversation.

Pudding arrives and it’s something else to focus on. Dylan digs in, he loves his pudding. I compose myself and get my payment ready for the bill. Our waiter comes over and appears embarrassed as he keys in £10 less into the payment machine than there is on the printed bill. I appreciate his enquiry into if I’m okay and his comforting smile as I pay the remainder of the bill.

Dylan’s nearly finished as the waiter leaves us. He is inhaling his food, clearly enjoying every mouthful as I start to pack away his pens and paper. I see a figure out of the corner of my eye approaching our table, it’s the friend of smiling lady, as far as I’m aware she’s had her back to us throughout the meal. She places a hand on my shoulder and leans in to say to me

‘From one carer to another, I know what it’s like.’

She slips a piece of paper on the table in front of me, it’s a flyer for the local carers support group. ‘Get in touch with them if you’re not already, they’re really good’.

I glance at the flyer

‘Yes I know them’ is my only response, ’thanks’.

‘No problem’ she says looking smug with her gesture of support and goes to sit back at her table.

‘For fucks sake’ I whisper under my breath. I turn back to Dylan who has finished his pudding and has taken the pen and paper out of my bag, he’s feverishly writing ‘car’.

We left, Dylan didn’t finish his coke (which is unheard of) and we walked in silence to the car.

Now, I have a number of issues having been on the receiving end of this interaction.

Firstly, I don’t believe a man paid for Dylan’s food. I think it was smiling lady and her friend. The request was to pay for Dylan’s food. Now Dylan’s 15. Who else would pay for a 15 year olds meal?

If it was a random man then who’s watching us? I am out for a meal with my son, what sort of person is motivated enough to pay part for a young boys meal, that’s just weird. It makes me feel paranoid that I am being watched, not a pleasant feeling.

Then there’s the offer of the support group; listen sweetheart, if I needed a support group I wouldn’t be out at the Beefeater sitting quietly enjoying a night out with my son. I would be at home, too scared to go out in case of others reactions, too worried about Dylan’s behaviour and not being able to cope.

I am out as a parent with my son, not as a carer. Out trying to be a good parent by having a positive interaction with my child. He is happy, I was happy. I am offended at her speculation that I may need some sort of support with this.

Thirdly and the most gutting thing of the whole event is that I fear Dylan was painfully aware of the whole thing.

He heard the conversation with the waitress, he saw I was upset, he knows the logo for the carers support group. Your interaction for support ruined my night out. I am incredibly uncomfortable that you contributed to his meal. It was a tip, a donation, to the disabled kid. This is not inclusive, hell if you wanted to do something nice pay for the whole frigging thing not just a random figure for the disabled kid. Paying it forward is an opportunity to celebrate the fact that you’ve noticed how nicely we’ve interacted, how well behaved he is, how nice it is to see a teenager out with his parent enjoying a meal. Not that he is ‘sweet’. What does that even mean?

Finally, pay when you leave, don’t sit and watch the situation pan out. It made me feel sick you waiting hungrily for the self-gratifying glory of paying for part of a kid’s meal.

What did you want, thanks? Me to be grateful? Dylan to perform a trick?

Controversial maybe, but I think that Dylan had part of his meal paid for because he is autistic.

I think that it was some kind of warped pity gesture under the cloak of paying it forward, doing something nice. Well it wasn’t nice, it was embarrassing, and hurtful.

It made me feel like I was being judged as not coping, of Dylan as being difficult when the reality is he did so, so well with coping with the difficulties that the visit presented. Your judgement dashed that effort and work away in an instant and made the situation about your judgement, your actions, your expectations.

Paying it forward is lovely if done right.

Maybe make contact with people, introduce yourself, get to know their story before you judge that they require your kindness? Otherwise it appears as charity.

If you are going to pay then pay, don’t pay part, don’t make it about a specific person; it’s a goodwill gesture, its not going dutch.

And don’t stick around to watch – that’s just gross.

I’m going back to the restaurant today to split a £10 tip between the ruffling hair waitress and the kind waiter from last night. I want to let them know that I understand the position they were put in and I also am not comfortable with what happened last night. Then I’m going to speak to management and suggest maybe they need some company policy or guidance for situations like this.

If you are going to pay it forward, pay it right.

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Smile!

The dentist has always been a great source of terror for many and this includes Dylan. We are so lucky to have a lovely dentist, she is kind and patient but the whole process terrifies Dylan, giving him an angry looking anxiety rash that creeps up from his chest, up his collar and around his neck.

He hates having his mouth invaded, he is so hypersensitive that teeth brushing has always been a very active and heavily involved area of care to ensure Dylan keeps well and cavity free.

We attend the dentist every 6 months and despite Dylan being compliant and coming in the room he will not sit in the dentist chair. He will watch Josh and Grace have their teeth checked and concentrates so hard on keeping his anxiety in check until his turn with the dentist is over and we can leave to the safety of the car home.

Dylan’s teeth are always checked with him sitting on a small fold up stool in the corner of the room. The dentist examines his teeth briefly as he will only half open his mouth for a few seconds at a time. She would kneel in front of him, with no seat herself and no light to see in his mouth. For years she could never see his back molars and relied on us to assure her that we persevered with his brushing and there have been no problems that we have noticed.

Over time with her patience and encouragement finally this month Dylan had his teeth check sitting in the dentist chair.

We offer him the oppotunity to sit in the dentist chair every appointment but Dylan usually point blank declines and grabs harder onto the seat of his trusty stool. This time he got up and sat with the dentist. I wouldn’t say he did it happily but he did it and he let her have a good look around. Good news is that everything looks fine; no cavities and no more baby teeth to come out.

Well done Dylan!

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College Days

Since April Dylan started his once a week placement at a supported group within the local college and to say he enjoys it is an understatement.

The day he attends he starts with breakfast club and then will go for a swim. He stays for lunch and finishes up with some choosing time and math practice in the afternoon. He gets the bus to the swimming centre and buys himself lunch or a treat if he’s taking a packed lunch. He is in a class with 5 other young people with varying needs. Thankfully he no longer seems afraid of his peers like he was at school, he seems relaxed and appears to be enjoying himself.

He seems to be managing the transition really well.

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Talking with teens

Kevin-and-PerryTeenager can be notoriously difficult, the hormones surging through their veins can result in temper tantrums, grunting responses, and generally poor communication. However the teenage years are proving a source of development for Dylan. Due the dissatisfaction with decisions being made and general lack of patience around the whole family is resulting in making great strides with his communication.

Quite often when I haven’t understood Dylans verbal approximations (or I am simply stupid and not able to mind read when he is thinking about something) I may  gently suggest to him that he get his iPad so I can understand. ‘No!’ is often the response I receive. This is not because Dylan objects to using the iPad but more of the fact that it has been left in a different room and he simply can’t be arsed to go and get it. ‘Shall I get it Dylan?’ ‘Yah bea’ he will grumble and happily use it once it is brought to him. If the Ipad is more accessible he will try to vocalise to us a couple of times as we guess his statement until he rolls his eyes, ‘Ipad’ he says he says before punching the words onto the device so that we can finally understand what he’s saying. We are all relieved to finally understand as he seems to be getting more and more exasperated with us as time goes on.

Increasingly so Dylan has discovered the function of the word ‘No’. I hear it a lot, over and over again. If he doesn’t agree with us or doesn’t wish to follow a request then the answer will often be a loud ‘No’ over and over again. Simple examples of our unreasonable requests which would warren this type of response would be ‘

Dylan its time for you to have a bath,’ ‘NO NO NO NO….’

‘Dylan go brush your teeth’, ‘NO NO NO NO….’

‘Dylan we are at the shops, shall we get out of the car now?’ ‘NO NO NO NO NO….’

You get the gist of it

This communication has been developing more and more over the last few months which as a family we find secretly delightful (we daren’t show our joy at his communication Dylan incase we anger him more).

The most public display of this behaviour occurred last weekend whilst visiting grandparent. When we visit other people’s houses Dylan often spends time in the kitchen raiding the cupboards and whilst this is an activity that amuses Dylan it’s not always appropriate. So this time when he verbally whispered ‘cracker’ to suggest that he would like to go to the kitchen and eat all of Nannys savoury items in her cupboards the answer from us was a delicate whisper back, ‘Not today, you could have some next time maybe?’

With eyes filled with fury he pulls his iPad out without making a sound and punches onto the screen, turns the volume up as loud as he can and with a long glare at us he presses the speech bar.

‘No. No. No. No. No. No. NO. NO. NO. NO. NO. NO. NO. NO! NO! NO! NO! NO! NO! NO!’

The family chatter within the room dies down and all eyes are on Dylan. He’s so consumed with his irritation at the result of the cracker conversation so that he simply doesn’t care, he breaks our eye contact, glances around the room at everyone and presses the speech bar again.

‘No. No. No. No. No. No. NO. NO. NO. NO. NO. NO. NO. NO! NO! NO! NO! NO! NO! NO!’

Absolutely shameless, I love it. Part of me expected him to strop out in a huff but I realised that only he didn’t as he probably couldn’t be bothered to.

Excellent. We have a teenager! 🙂

 

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April is Autism Awareness Month: Day 1 – Queues

Autism Awareness from 2017

With a hop, skip and a jump

April is Autism awareness month. For anyone who doesn’t have their head in the clouds and is already AWARE of autism let’s spread that gesture to ACCEPTANCE and UNDERSTANDING.

I can’t speak for all people with autism just because I know one and I’m not going to claim to be able to. Just like I can’t speak for all women or parents just because I am one.

But I *do* know Dylan and if I can increase the worlds understanding of Dylan and his autism using everyday examples then hopefully we can all create a society that has insight and understanding for him and others like him.

Day 1: Queues.

Dylan can appear rude because he often doesn’t understand or adhere to social rules such as queuing. To Dylan if he wants to buy something in a shop and sees a cashier at the till then he wants to…

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Efforts to include

It’s Easter Sunday and Dylan’s had a good day with a family lunch and after dinner games. Everyone enjoyed the spelling, maths and celebrity guessing games whilst Dylan requested sitting away and watching his favourite programme on the telly. After a while he came and sat back at the table with us so we showed him how to select the correct amount of cards to be placed on the board for each of us to take our turn on the game.

Now I know that Dylan couldn’t give a hoot about how many constanants or vowels we need to play but with support he enjoyed sharing the game with us and seemed happy to have a role within it.

Little efforts were made to promote inclusion; it doesn’t take much.