Dylan went to the doctors today. Thankfully as a healthy child he doesn’t see the GP much. At all.
But recently I’ve noticed small bones protruding from just above the arches of his feet. The bumps are rubbing on his shoes resulting in him having small pressure sores developing. Dylan’s having to wear socks in the current stifling heat to avoid the skin there breaking down further.
Although Dylan lets me look and check these lumps without complaining, his body language tells me it hurts. He flaps violently when he thinks they are going to be touched, his whole body stiffening with anxiety until he is reassured thst these sensitive areas won’t be meddled with.
We had no option but to visit the GP. We talked this through with Dylan who appeared to be okay and understand the basic process we were explaining to him.
Appointment time came and went but Dylan was a superstar waiting patiently in the busy waiting room for his appointment. Finally we were called into the GP office Dylan kept his anxiety under control and allowed the doctor to look and feel the bony protrusions. I explained to the doctor they don’t look right and seem sore although Dylan’s communication difficulties make this really hard for him to relay to us.
‘Its all fine ‘
doc said as if I was being a bit silly bringing my concerns. He went on…
‘We all have different feet, as long as he is exercising plenty he’ll be fine.
Keep him moving”
That’s it. Consultation over. 4 minutes.
Dissatisfied with the advice from the GP we leave politely and get in the car so I can contact my default doctor for advice;
Dr Google: search term “painful bump on side of foot”
First result of many all saying the same thing is this:
Seems Dylan is fitting the descriptor for a diagnosis of having Accessory Navicular Bone.
Side effects of which are possible fractures, loss of stability of joints, development of ‘flat feet’, loss of mobility and pain which “gradually becomes worse, and… is aggravated by activity, walking, etc.” Resulting in Accessory Navucular Syndrome which can be debilitating and require a range of treatments.
Seems my inital discontent at the advice of ‘exercising plenty’ was not misplaced and indeed will not remedy this issue.
I’m so mad!
- Dylan has his diagnosis of autism in bold on his medical notes on the computer screen.
- I told the doctor clearly that Dylan can’t tell us if he’s hurting.
- We never go to the doctor but had presented for this ailment so it clearly is a concern and we were nothing short of fobbed off.
First thing tomorrow; I’m self referring to a podiatrist for a proper examination for Dylan and some advice for me. Something I think I probably should have done in the first place.