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Remember remember…

The 5th of November. Good old Guy Fawkes didn’t manage to blow up parliament. 

Probably the most famous failure that’s celebrated year on year. 
Lots of fireworks.  

Noise. 

More change to routine by going to unfamiliar places, at unfamiliar times of day. 

And so soon after Halloween! 

Dylan took tonight’s fireworks in his stride. We explained earlier today what we would be doing. He wrapped up well and the ear defenders remained on throughout but; he was okay. Much less unsettled than last year which is all good progress. It was freezing out and he had really had enough by the time we were done, no amount of hot chocolate could keep him out longer but he did well. Really well 🙂


November also marks a new month of core words. 

I’ve struggled with preparing for this monthly task and October’s practice with this wasn’t great: It’s so hard to locate all the words in time to make it functional! 

I’m really aware that Dylan needs this though to expand from just requests and his ‘safe’ language. These core words will help his language grow so I’m gutted that October was such a flop. 

But this is a new month and I’m ready for it, I just have to thaw out first! Brrrr!

Hope everyone has a happy and safe bonfire night. 

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Poorly sick

Dylans not well tonight. He seemed okay earlier but a charicteristic *cough cough blurgh* gave the game away just before bedtime. 

Thankfully Dylans not really been a sickly child. He’s had his fair share of coughs and cold and the odd tummy bug. But no broken bones. No operations. No emergencies.  I realise how lucky we are.

*cough, cough blurgh*

I’ve gone to Dylan twice tonight on hearing his distinctive vomiting call. He loses the ability to communicate totally. He looks up at me with desperation in his eyes, overwhelmed by the unfamiliar sensation of nausea; unable to verbalise, point or use the iPad.

*cough, cough bleugh*

All I can do is try and reassure him he’s okay, that he’s doing the right thing trying to relax and let it all out and follow him with the bucket. He paces around and vomits wherever he is when the sensation arises. 

There’s vomit up the walls, on the curtains. All over his clothes and in his hair. I start to run the third bath of the night. 

*cough, cough, bleugh*

Finally  all washed and with bedding changed I settle Dylan back into bed with a clean bucket. The washing machine downstairs is whirring away on its final cycle. The bath is bleached and freshly  soiled bedding has been hand-washed all ready for next load.

*cough, cough…*

I pause,  hold my breath to see if this is the same cough as before. Trying  to detect a pattern. It’s the only way I can tell if he’s about to puke again. Dylan has no way of telling me. It’s all guesswork. 

*cough cough cough*

He’s just coughing. I exhale deeply. After all he has his bucket if he needs it. I quickly finish up bleaching the floor and wiping down the walls. My hands are sore from the chemicals and constant rubbing and scrubbing,  I dry them and go downstairs to lock up. It’s 11pm. I wanted an early night and came up to bed before the drama started at about 9.30m. Feeling tired now. The washing machines finished so I empty it and reload it with half of the partly hand-washed sicky bedclothes. Lights off and I make my way back upstairs. 

*Cough cough bleugh*

Poor boy. It’s going to be a long night.

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National Stress Awareness Day 2016

How can caring affect families?

When a child is diagnosed with a disability the amount of information and support offered to the family varies. Families can feel very alone and unsure about how to support their child, or what will happen in the future. Seeing challenging behaviour appear in a young child can be upsetting and confusing. There is a lot to learn and getting professional help and specialist services can be difficult.

Families are often socially isolated and can be left out of family events, activities and places in the local community because of their family member’s behaviour. Family carers say they have feelings like stress, frustration, anger, guilt, shame and loneliness, or feel that no-one understands what they are going through. Feeling low or stressed can sometimes lead to mental health problems like depression or anxiety, that need medical help. Relationships break down more often for people whose son or daughter’s behaviour challenges. Finding support and time alone to relax is really important, but can be hard. Meeting other parents is really helpful to get support and to share ideas of what has helped.

Eating well, exercising and getting enough sleep can be tough when your family member’s needs come first, especially if they have sleep problems. Families can plan their time to do activities that are good for all the family and be healthy together.

Parents might not be able to work and extra money is spent if things get broken or equipment and changes are needed at home. There are benefits, direct payments and grants that families might be entitled to.

Taken from the Challenging Behaviour Foundation Website http://www.challengingbehaviour.org.uk